Series III: Fieldnotes
Extent
Scope and Contents
This series contains the archived websites featured on the Fieldnotes page of the Disability Covid Chronicles website. The fieldnotes include artwork, news articles, opinion pieces, social media posts, petitions, event listings, videos, photographs, art exhibitions, government documents, and toolkits on experiences of disabled people during the COVID-19 pandemic. This research was collected by NYU Center for Disability Studies researchers from 2020-2024.
Arrangement
Series is arranged alphabetically by creator.
@kateisresting
Creator
Scope and Contents
Tweet starting the #AccessiblilityForAbleds hashtag.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://x.com/kateisresting/status/1236440655095689216/
60 Minutes
Creator
Scope and Contents
Video of President Joe Biden on 60 Minutes.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.youtube.com/watch?v=MIQz0fsX38U
Ackerman, Emily
Creator
Scope and Contents
Article by Emily Ackerman on COVID-19 isolation.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://disabilityvisibilityproject.com/2021/03/10/my-year-of-nothing-but-everything/
Al-Aly, Ziyad; Xie, Yan; Choi, Taeyoung
Creator
Scope and Contents
Preprint on if nirmatrelvir lessens risk of Long COVID.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.medrxiv.org/content/10.1101/2022.11.03.22281783v1/
American Association of People with Disabilities
Creator
Scope and Contents
Press release by the American Association of People with Disabilities on the reduction in isolation guidance by the CDC.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.aapd.com/statement-against-changes-to-cdc-guidance/
AORTA (Anti-Oppression Resource and Training Alliance)
Creator
Scope and Contents
Image containing the words "Disabled People Deserve to Live." The post calls for a public health strategy that includes disabled people.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.instagram.com/p/CYmYN9KFjkv/
Arielle, Zipporah
Creator
Scope and Contents
Article by Zipporah Arielle on Holocaust Remembrance Day during COVID.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://disabilityvisibilityproject.com/2020/04/15/yom-hashoah-in-the-times-of-covid-19/
Barbarin, Imani
Creator
Scope and Contents
TikTok video by Imani Barbarin on COVID-19 being a mass disabling event.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.tiktok.com/@crutches_and_spice/video/6905830183601769733/
Benness, Brianne
Creator
Scope and Contents
Article by Brianne Benness on vaccine hesitancy for people with chronic illness.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://disabilityvisibilityproject.com/2021/09/07/high-risk-vaccine-hesitancy/
Brooklyn Center for Independence of the Disabled
Creator
Scope and Contents
Photographs of members of the Brooklyn Center for Independence of the Disabled handing out KN95 masks and leaflets at Atlantic Terminal in Brooklyn.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.facebook.com/BrooklynBCID/posts/5909078142445974/
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.facebook.com/BrooklynBCID/posts/pfbid0358jX1x19rj55f34PtwbduiHVtsPydYUmM8iwu6MbmvhhymF6bMjHBYeuEDJGR6j8l
California Care Rationing Coalition
Creator
Scope and Contents
Stacey Milbern on her concerns about care rationing as a ventilator user at a May 6, 2020 Press Conference with the California Care Rationing Coalition.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.youtube.com/watch?v=Oy3WgvCZEjg
Center for Disease Control
Creator
Scope and Contents
CDC article on racial disparities in treatment of COVID-19 from 2022.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.cdc.gov/mmwr/volumes/71/wr/mm7143a2.htm
Centers for Medicare & Medicaid Services
Creator
Hospital-Acquired Condition Reduction Program
Scope and Contents
Information on the Centers for Medicare and Medicaid on a value-based-purchasing program to link inpatient hospital care with Medicare payments.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.cms.gov/medicare/payment/prospective-payment-systems/acute-inpatient-pps/hospital-acquired-condition-reduction-program-hacrp/
The Hospital Value-Based Purchasing (VBP) Program
Scope and Contents
Information on the Centers for Medicare and Medicaid to receive incentive patients for high quality of care in the inpatient hospital setting.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.cms.gov/medicare/quality/value-based-programs/hospital-purchasing/
Chalkbeat
Creator
"How remote learning upended instruction for NYC students with disabilities and their families"
Scope and Contents
Article in Chalkbeat on remote learning for students with disabilities.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.chalkbeat.org/newyork/2020/6/17/21295121/remote-learning-special-education-nyc/
"NYC students with disabilities denied crucial services during remote learning, suit alleges"
Scope and Contents
Article in Chalkbeat on lawsuit filed against New York City on owed special education student hours during the COVID pandemic.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.chalkbeat.org/newyork/2020/11/23/21612214/special-education-lawsuit-nyc-remote-learning/
"NYC gives the OK to shrink special education services amid coronavirus upheaval"
Scope and Contents
Article in Chalkbeat on reducing special education services at the beginning of the COVID pandemic.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.chalkbeat.org/newyork/2020/4/8/21225484/nyc-gives-the-ok-to-shrink-special-education-services-amid-coronavirus-upheaval/
Chinese-American Planning Council
Creator
Scope and Contents
Graphic celebrating the 50th anniversary of Chinese-American Planning Council's Open Door Senior Center.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.facebook.com/photo/?fbid=10160319600719131&set=pcb.10160319602539131
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.cpc-nyc.org/news/3728/cpc-open-door-senior-center-celebrates-its-50th-anniversary/
Contreras Maya, María Celina
Creator
Scope and Contents
Tweet thread about New York City subway station accessibility.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://x.com/mayatcontreras/status/1417490153350869000/
Critical Design Lab
Creator
Scope and Contents
The website includes a participation guide for setting up a Remote Access party as well as event listings for previous events from 2020-2023.
Historical Note
Remote Access is a nightlife event for disabled people curated and designed by the Critical Design Lab.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.criticaldesignlab.com/project/remote-access-party/
Davids, JD
Creator
Scope and Contents
Blog post by JD Davids on people having the right to health despite being unvaccinated.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://thecrankyqueer.substack.com/p/covid19-i-love-unvaccinated-people/
The Death Panel
Creator
Scope and Contents
The website contains episodes and transcripts, as well as information on their Medicare for All Week of action in 2021.
Historical Note
The Death Panel is a podcast hosted by Beatrice Adler-Bolton, Artie Vierkant, Phil Rocco, and Jules Gill-Peterson on the "political economy of health."
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.deathpanel.net/
de Freytas-Tamura, Kimiko
Creator
Scope and Contents
Article on protests against the Museum of Chinese in America.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.nytimes.com/2021/08/19/nyregion/chinatown-museum-protests.html
Disability Rights Advocates
Creator
Scope and Contents
Press release from 2022 on disability advocates and the MTA signing a settlement agreement to make the subway 95% accessible by 2055.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://dralegal.org/press/mta-settlement/
Dolan, Gearóid
Creator
Scope and Contents
Website for The Biggest Obstacle, a documentary examining accessibility in the MTA subway system.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://thebiggestobstacle.com/
Downstate New York ADAPT
Creator
Scope and Contents
Photo of Downstate New York ADAPT protesters.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://x.com/DNY_ADAPT/status/1523799508995379205/
EV Grieve
Creator
Scope and Contents
Blog post by EV Grieve on the NYPD sweep of unhoused residents in the East Village. Includes interviews of the residents of "Anarchy Row."
Externally hosted content
https://wayback.archive-it.org/30551/*/https://evgrieve.com/2022/04/anarchy-row.html
Gaeta, Amy
Creator
Scope and Contents
Article by Amy Gaeta on virtual home building and rebuilding during the COVID-19 pandemic.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://disabilityvisibilityproject.com/2020/03/26/disabled-communities-in-the-covid-19-pandemic/
Gardiner, Finn
Creator
Scope and Contents
Article by Finn Gardiner on ableism and fatphobia during the COVID-19 pandemic.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://disabilityvisibilityproject.com/2020/03/30/fatphobia-ableism-and-the-covid-19-pandemic/
Hinds, Carolyn
Creator
Scope and Contents
Article by Carolyn Hinds on the film industry and accessibility.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://disabilityvisibilityproject.com/2021/10/13/accessibility-and-the-lack-thereof-in-the-film-industry/
Ho, Sandy
Creator
Scope and Contents
Article by Sandy Ho on the Better Care Better Jobs Act.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://disabilityvisibilityproject.com/2021/07/25/moving-from-survival/
Jackson, Monique
Corona Diary Instagram
Scope and Contents
Instagram feed of Monique Jackson's graphic journal.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.instagram.com/_coronadiary/
Still Ill: Corona Diary
Scope and Contents
Still Ill: Corona Diary is a graphic journal made up of a series of drawings documenting Monique Jackson's experiences after falling ill from a suspected infection of Covid-19 in March 2020.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.stillillcoronadiary.com/
Johnson, Cyree Jarelle
Creator
Scope and Contents
Article by Cyrée Jarelle Johnson on Black disability history.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://disabilityvisibilityproject.com/2020/05/14/a-paradoxical-history-of-black-disease/
Long COVID Justice
Creator
Commit to Long COVID Justice
Scope and Contents
Pledge on committing to justice for Long COVID.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://actionnetwork.org/forms/sign-the-long-covid-justice-pledge/
Long COVID Justice Instagram
Scope and Contents
Instagram feed for the Long COVID Justice grassroots organization. Includes posts on resource sheets and events.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.instagram.com/LongCOVIDJustice/
Long COVID Justice Valentines
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.instagram.com/p/C3VPMl9r3oF/
"Pandemics Are Chronic"
Scope and Contents
Statement by Long COVID Justice on prioritizing chronically ill and disabled people beyond the COVID-19 pandemic.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://longcovidjustice.org/pandemics-are-chronic/
Mariani, Mike
Creator
Scope and Contents
Article in the Guardian on the acceptance of Long COVID as a health condition.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.theguardian.com/society/2022/feb/03/long-covid-fight-recognition-gaslighting-pandemic/
Mugrabi, Sunshine
Creator
Scope and Contents
Article in Rooted in Rights by Sunshine Mugrabi.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://rootedinrights.org/what-do-you-do-when-you-cant-wear-a-mask/
Myalgic Encephalomyelitis Action Network
Creator
2022 #MillionsMissing Newsletter
Scope and Contents
Newsletter on the 2022 #MillionsMissing protest.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://mailchi.mp/meaction/nih-comes-up-short-once-again-2269685/
#MillionsMissing Our Demands
Scope and Contents
Letter from the Myalgic Encephalomyelitis Action Network calling for President Biden to declare Long COVID and myalgic encephalomyelitis/chronic fatigue syndrome a national emergency.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://millionsmissing.meaction.net/our-demands/
Postcards to Doctors
Scope and Contents
Postcard campaign by the Myalgic Encephalomyelitis Action Network to encourage United States doctors to take a course on myalgic encephalomyelitis.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.meaction.net/postcards2020/
National Federation of the Blind
Creator
Letter Regarding the Accessibility of At-Home COVID-19 Tests and Test Requests (January 3, 2022)
Scope and Contents
Letter to the President of the United States from the National Federation of the Blind on making at-home COVID tests accessible to blind people.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://nfb.org/programs-services/advocacy/policy-statements/letter-regarding-accessibility-home-covid-19-tests-and/
Letter to FDA Commissioner Regarding Accessible Instructions for At-Home COVID-19 Test Kits (February 4, 2022)
Scope and Contents
Letter to the Commissioner of the United States Food and Drug Administration from the National Federation of the Blind on creating accessible at-home COVID tests for blind people.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://nfb.org/programs-services/advocacy/policy-statements/letter-fda-commissioner-regarding-accessible/
NBC News
Creator
Scope and Contents
NBC News article on the rollout of the Mpox vaccine.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.nbcnews.com/health/health-news/went-wrong-rollout-monkeypox-vaccine-rcna38017/
New York Office of the Mayor
Creator
Scope and Contents
Press release from the New York City mayor's office.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.nyc.gov/mayors-office/news/2022/11/mayor-adams-plan-provide-care-individuals-suffering-untreated-severe-mental/
New York Governor
Creator
Scope and Contents
Press release on closure of non-essential businesses at the onset of the COVID-19 pandemic.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.governor.ny.gov/news/governor-cuomo-signs-new-york-state-pause-executive-order/
New York State Assembly
Creator
New York State Assembly Bill A5367A
Scope and Contents
Bill that removes "certain restrictions on eligibility for personal and home care services under Medicaid."
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.nysenate.gov/legislation/bills/2021/A5367/
New York State Assembly Bill A7712B
Scope and Contents
Bill that "provides for a myalgic encephalomyelitis/chronic fatigue syndrome education and outreach program."
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.nysenate.gov/legislation/bills/2021/a7712/
New York City Public Schools
Creator
Scope and Contents
Includes New York City Public Schools updates to COVID-19 Health and Safety Protocols in 2021.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.schools.nyc.gov/about-us/messages-for-families/past-messages-2021/
New-York Historical Society
Creator
Scope and Contents
Exhibit at the New-York Historical Society on the history of homelessness and artist and activist response in the 1980s and 1990s.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.nyhistory.org/exhibitions/art-change-artist-homeless-collaborative/
NoBody Is Disposable Coalition
Creator
Scope and Contents
A toolkit that covers rights and strategies for people facing potential triage discrimination based on disability or weight, alone or in combination with other characteristics, during the COVID-19 pandemic in the United States.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://nobodyisdisposable.org/know-your-rights/
NY1
Creator
Scope and Contents
NY1 report on COVID sub-variant JN.1.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://ny1.com/nyc/all-boroughs/health/2023/12/20/jn-1-covid-19-subvariant/
Ocula
Creator
Scope and Contents
Article in Ocula about the CRIP TIME exhibit at the MMK Museum für Moderne Kunst in Frankfurt, Germany.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://ocula.com/magazine/spotlights/crip-time-mmk-frankfurt/
Open Doors NYC
Creator
Historical Note
Open Doors NYC is a collective of nursing home residents, advocates, and allies who work through art and activism. Their projects include documentaries, poetry anthologies, plays, professional development workshops, a podcast, and weekly events.
Meet The Reality Poets
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.opendoorsnyc.org/realitypoets-1/
Open Doors NYC
Scope and Contents
The website includes a Nursing Home Bill of Rights.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.opendoorsnyc.org/
Fire Through Dry Grass
Scope and Contents
The website contains a synopsis, trailer, and biographies of filmmakers.
Historical Note
Fire Through Dry Grass is a documentary by Alexis Neophytides and Andres "Jay" Molina on nursing home residents on Roosevelt Island during the COVID-19 pandemic.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.firethroughdrygrass.com/
Oshin, Olafimihan
Creator
Scope and Contents
Article in the Hill on protests outside of the White House in 2022 by people who suffer from Long COVID and chronic fatigue syndrome.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://thehill.com/policy/healthcare/3651109-protesters-rip-biden-on-covid-pandemic-is-not-over/
Osmundson, Joseph
Creator
Scope and Contents
Tweet about Mpox.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://x.com/reluctantlyjoe/status/1572617222388084738/
Parents for Responsive Equitable Safe Schools
Creator
Scope and Contents
Website containing charts of weekly New York City COVID case rates, children hospitalized from COVID rates, and child death from COVID rates.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://pressnyc.github.io/
Partnership for Inclusive Disaster Strategies
Creator
Ending the COVID Emergency is a Disaster for Disabled People
Creator
Scope and Contents
Press release by the Partnership for Inclusive Disaster Strategies on the lifting of the COVID-19 Public Health Emergency by the Biden Administration.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://disasterstrategies.org/ending-the-covid-emergency-is-a-disaster-for-disabled-people/
The Partnership for Inclusive Disaster Strategies X Post
Creator
Scope and Contents
X post that says, "COVID-19, Here to Stay, we failed. Ending the #COVID Emergency is a #Disaster for #Disabled People Decisionmakers declaring that the loss of 400+ of our people per day does not rise to the level of being an emergency."
Externally hosted content
https://wayback.archive-it.org/30551/*/https://x.com/disasterstrat/status/1654987838310555655/
People's CDC
Creator
Historical Note
The People's CDC is a watchdog and advocacy group of healthcare, science, and public health advocates and professionals working to provide guidance on navigating COVID-19 for local and federal government agencies.
"CDC's HICPAC needs public oversight"
Creator
Scope and Contents
Blog post by the People's CDC on oversight for the Center for Disease Control's Healthcare Infection Control Practices Advisory Committee (HICPAC).
Externally hosted content
https://wayback.archive-it.org/30551/*/https://peoplescdc.substack.com/p/cdc-hicpac-needs-public-oversight/
People's CDC
Scope and Contents
The website features COVID-19 wastewater data; contagious illness updates; press releases; an external review of the CDC; action campaigns; webinars; and other news updates.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://peoplescdc.org/
Tell Medicare/Medicaid: Hospitals should protect us from COVID-19
Creator
Scope and Contents
Guide for submitting a public comment to the Centers for Medicare and Medicaid to include COVID care in Hospital-Acquired Condition (HAC) Reduction Program and/or its Value-Based Purchasing Program.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://peoplescdc.substack.com/p/public-comment-care-not-covid/
Universal Masks and COVID-19 Admission Screening Should be Standard of Care
Creator
Scope and Contents
Fact Sheet by the People's CDC on universal masks as standard of care in healthcare.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://docs.google.com/document/d/1tjDPmp11o82wo6feJFNYkSZGpIqpUaVArorwKMyZ3uQ/edit?tab=t.0
Peters, Gabrielle
Creator
Scope and Contents
X feed of Gabrielle Peters, a disabled writer and policy analyst.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://x.com/mssinenomine/
Piepzna-Samarasinha, Leah Lakshmi
Creator
"a long winter crip survival guide for pandemic year 4/forever"
Creator
Scope and Contents
Guide to pandemic survival for immunocompromised people in the later years of COVID.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://docs.google.com/document/d/1BKn06il9Y4BHCZKEmgJldv64LqxyG_KGjixw9vmynwg/edit?tab=t.0
"Cripping The Resistance: No Revolution Without Us"
Scope and Contents
Article by Leah Lakshmi Piepzna-Samarasinha on disability activism and justice.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://disabilityvisibilityproject.com/2020/08/24/cripping-the-resistance-no-revolution-without-us/
"How Disabled Mutual Aid Is Different Than Abled Mutual Aid"
Scope and Contents
Article by Leah Lakshmi Piepzna-Samarasinha on disabled mutual aid.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://disabilityvisibilityproject.com/2021/10/03/how-disabled-mutual-aid-is-different-than-abled-mutual-aid/
Pulrang, Andrew
Creator
Scope and Contents
Article in Forbes by Andrew Pulrang.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.forbes.com/sites/andrewpulrang/2021/03/21/what-disabled-people-are-thinking-and-feeling-about-the-pandemic-one-year-later/
Raskin, Jamie
Creator
Scope and Contents
Press release by Jamie Raskin.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://raskin.house.gov/2020/4/dhs-officials-refuse-release-asylum-seekers-and-other-non-violent-detainees/
"The Sequential Organ Failure Assessment (SOFA) and revised ventilator triage guidance: since we are still implementing outdated and more inequitable frameworks now, will we learn any lessons longer term?"
Creator
Scope and Contents
Article by Harald Schmidt, Dorothy E Roberts, and Amaka D Eneanya on ventilator triage.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://blogs.bmj.com/medical-ethics/2021/10/12/the-sequential-organ-failure-assessment-sofa-and-revised-ventilator-triage-guidance-since-we-are-still-implementing-outdated-and-more-inequitable-frameworks-now-will-we-learn-any-lessons-longer-te/
Schuchman Deaf Documentary Center
Creator
Scope and Contents
Panel discussion on New York City Deaf life during the COVID-19 pandemic.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://gallaudet.edu/schuchman-documentary-center/schuchman-documentary-center-projects/deaf-nyc/deaf-nyc-apart-and-connected/
Sick in Quarters Collective
Creator
Historical Note
Sick in Quarters (SiQ) is a remote disabled artist-led collective.
COVID-19 Protest Resources
Creator
Scope and Contents
Brochure on how to stay safe from COVID-19 during protests, as well as Know Your Rights information.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://drive.google.com/file/d/1oMiDct-nioTmAmkC-yNcacE_U2a64-6I/view
Sick in Quarters Linktree
Scope and Contents
The Linktree contains links to events, fundraising campaigns, and the mask distribution network database.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://linktr.ee/siq?fbclid=PAAaaWfo_Zz26ccRdUFxWrZo-paw5BJUkH1vp6mhX1h2qVcmUcKGrKk15OZ24
The Sick Times
Historical Note
The Sick Times is a news website focusing on the continuing impact of COVID and Long COVID.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://thesicktimes.org/
"Covid-19 in the hierarchy of the Gaza health crises"
Externally hosted content
https://wayback.archive-it.org/30551/*/https://thesicktimes.org/2023/12/19/covid-in-the-hierarchy-of-the-gaza-health-crises/
"Kennedy's HHS commits to Long COVID, but without clear funding"
Externally hosted content
https://wayback.archive-it.org/30551/*/https://thesicktimes.org/2024/03/05/its-all-hands-on-deck-for-long-covid-awareness-day-as-the-cdc-ignores-long-covid-in-new-guidance/
The Sick Times
Externally hosted content
https://wayback.archive-it.org/30551/*/https://thesicktimes.org/
Sjunneson, Elsa
Creator
Scope and Contents
Article by Elsa R. Sjunneson on assisted suicide, quality of life, and triage during COVID.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://disabilityvisibilityproject.com/2020/04/27/my-life-has-quality/
Sommerstein, Michele
Creator
Scope and Contents
Essay by Michele Sommerstein on being disabled in New York City during the COVID-19 pandemic.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://rebelwheelssoapbox.tumblr.com/post/632314695876018176/disabled-in-nyc-mycovidstory/
Soyer, Hannah
Creator
Scope and Contents
Article by Hannah Soyer on ableism at the beginning of the COVID pandemic.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://disabilityvisibilityproject.com/2020/05/18/reasons-to-be-angry-during-a-pandemic/
Special Support Services, LLC
Creator
Historical Note
Special Support Services provides "affordable advocacy, systems navigation, and peer support for NYC families of students with disabilities."
"Spread Thin: Survey Reveals Students Without Special Education Instruction"
Scope and Contents
Report by parents and advocates of Special Support Services, LLC.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://specialsupportservices.com/wp-content/uploads/2020/11/surveyanalysis_final.pdf
Special Support Services, LLC
Scope and Contents
Website includes testimonials, community surveys, and an intake form.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://specialsupportservices.com/
The Squeaky Wheel
Creator
Scope and Contents
Satirical article on the end of the COVID-19 pandemic.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://thesqueakywheel.org/immunocompromised-man-learns-covid-is-over/
Stolberg, Sheryl Gay
Creator
Scope and Contents
Article in the New York Times on the backlash to President Biden's statement on the COVID-19 pandemic being "over."
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.nytimes.com/2022/09/19/us/politics/biden-covid-pandemic-over.html
Stratman, Josephine
Creator
Scope and Contents
Daily News article on mask mandates in hospitals in New York.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.nydailynews.com/2024/01/03/as-covid-spikes-in-nyc-mask-mandates-return-to-city-hospitals/
Tran, Lucky
Creator
Scope and Contents
X post by Dr. Lucky Tran on masking.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://x.com/luckytran/status/1737201157045424363/
White-Johnson, Jen
Creator
Scope and Contents
Live mural painting event by Jen White-Johnson to honor Black disabled people. Also includes mock-ups for potential other murals by White-Johnson.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://jenwhitejohnson.com/Black-Disabled-Lives-Matter-Mural-Project/
Whitney Museum of American Art
Creator
Historical Note
2 Lizards is a film by Meriem Bennani and Orian Barki that depicted "a surrealist view of the early months of the COVID-19 pandemic as it unfolded in New York City." The film was presented at the Whitney Museum of American Art in 2022-2023.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://whitney.org/exhibitions/2-lizards/
Wong, Alice
Biographical Note
Alice Wong (1974-) is a disability rights activist and founder of the Disability Visibility Project (DVP). DVP was established in 2014 and features articles on "disability media and culture."
#HighRiskCA: COVID-19 prioritization for high-risk Californians
Scope and Contents
Curated list of tweets and articles on the elimination of the "1C phase of prioritized groups for vaccination" in California.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://wakelet.com/wake/5l0jl6dtU_LYG0rNRY6LW/
"#N95s4UCSF: Call to Action"
Scope and Contents
Blog post by Alice Wong calling for an N95 mask mandate at University California San Francisco Health.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://disabilityvisibilityproject.com/2024/01/25/n95s4ucsf-call-to-action/
Alice Wong Instagram Post
Scope and Contents
Instagram post about Alice Wong's visit to the Intensive Care Unit.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.instagram.com/p/C2iRdEIPz7L/
"And Now Here We Are"
Scope and Contents
Article on disabled people's experiences in the United Kingdom during COVID.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://disabilityvisibilityproject.com/2021/03/22/what-the-disabled-community-offered-the-world/
Coronavirus and the disability community #HighRiskCOVID19
Scope and Contents
Curated list of tweets and articles related to COVID-19 and the disability community.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://wakelet.com/wake/1633ef52-2ade-43a9-b118-50d19f821cb7/
"Disabled Advocates Demand Better Vaccine Access as They Face Greater Risks of Dying from COVID-19"
Scope and Contents
Interview with Alice Wong on Democracy Now!
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.democracynow.org/2021/2/9/advocates_demand_vaccine_access_disabled_people/
"Disabled Oracles and the Coronavirus"
Scope and Contents
Article on the medical industry complex.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://disabilityvisibilityproject.com/2020/03/18/coronavirus/
Disability Visibility Project
Scope and Contents
About page for the Disability Visibility Project.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://disabilityvisibilityproject.com/about/
"Food Insecurity & COVID-19: Interview with Héctor M. Ramírez"
Scope and Contents
Article on hunger and food insecurity during COVID.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://disabilityvisibilityproject.com/2020/05/12/food-insecurity-covid-19-interview-with-hector-m-ramirez/
"Freedom for Some Is Not Freedom for All"
Scope and Contents
Article on disability rights.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://disabilityvisibilityproject.com/2020/06/07/freedom-for-some-is-not-freedom-for-all/
"High-Risk Pandemic Stories: A Syllabus"
Scope and Contents
Blog post on the Disability Visibility Project. Links to interviews, guest essays, and podcast episodes on the Project's website.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://disabilityvisibilityproject.com/2022/01/09/high-risk-pandemic-stories-a-syllabus/
"I'm disabled and need a ventilator to live. Am I expendable during this pandemic?"
Scope and Contents
Article by Alice Wong in Vox.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.vox.com/first-person/2020/4/4/21204261/coronavirus-covid-19-disabled-people-disabilities-triage/
"'It Just Burns Me Up': Disability Activist Alice Wong Reminds California This Pandemic Is Far From Over"
Scope and Contents
Interview with Alice Wong on KQED.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.kqed.org/news/11819539/it-just-burns-me-up-disability-activist-alice-wong-reminds-california-this-pandemic-is-far-from-over/
"Message from the Future: Disabled Oracle Society"
Scope and Contents
Talk given by Alice Wong.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://disabilityvisibilityproject.com/2020/08/14/message-from-the-future-disabled-oracle-society/
"Night of Ideas"
Scope and Contents
Talk given by Alice Wong on KQED.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://docs.google.com/document/d/1GC6io3ScpOEO9wcmNStCuTS0gCU1qCiM8c8TL6SidQ0/edit?usp=sharing
Q&A with Andres "Jay" Molina and Alexis Neophytides
Scope and Contents
Article on the documentary, Fire Through Dry Grass.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://disabilityvisibilityproject.com/2020/12/16/qa-with-andres-jay-molina-and-alexis-neophytides/
Q&A with Ingrid Tischer
Scope and Contents
Interview with Ingrid Tischer on end-of-life care and hospitalization.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://disabilityvisibilityproject.com/2021/03/06/qa-with-ingrid-tischer/
Q&A with Sabrina Epstein
Scope and Contents
Article on the COVID-19 vaccine prioritization dashboard.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://disabilityvisibilityproject.com/2021/02/12/qa-with-sabrina-epstein/
Q&A with Tory Cross
Scope and Contents
Article on vaccine equity in California.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://disabilityvisibilityproject.com/2021/02/21/qa-with-troy-cross/
"The Political is Personal"
Scope and Contents
Essay by Alice Wong as part of PEN America's "We Will Emerge" project. The project aimed to reach out to voters ahead of the 2020 Presidential Election.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://pen.org/the-political-is-personal/
"There Is No One Way"
Scope and Contents
Essay by Alice Wong in SFMoMa's Open Space magazine.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://openspace.sfmoma.org/2020/05/there-is-no-one-way/
"What the Disabled Community offered the world"
Scope and Contents
List of tools members of the disability and chronic illness community offered the world.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://disabilityvisibilityproject.com/2021/03/22/what-the-disabled-community-offered-the-world/
"Voters With Disabilities Face Barriers in 2020 From COVID-19"
Scope and Contents
Article by Alice Wong in Teen Vogue.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.teenvogue.com/story/voters-with-disabilities-barriers-covid/
World Health Organization
Creator
Scope and Contents
X post by the World Health Organization declaring the COVID-19 health emergency over.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://x.com/WHO/status/1654477334139863041/
Zucker, Howard David
Letter from Howard Zucker
Creator
Scope and Contents
Letter from the commissioner of the New York Department of Health on "regulations regarding the use of codeine and tramadol in children and a rare disorder called Myalgic Encephalomyelitis/Chronic Fatigue Syndrome" in May 2017.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.health.ny.gov/diseases/conditions/me-cfs/docs/2017-05_commissioner_letter.pdf
Letter from Howard Zucker
Creator
Scope and Contents
Letter from the commissioner of the New York Department of Health on the state of the COVID-19 pandemic in July 2021.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://www.health.ny.gov/commissioner/letters/docs/2021-07.pdf
#MyDisabledLifeIsWorthy
Scope and Contents
Tweets using the hashtag #MyDisabledLifeIsWorthy.
Externally hosted content
https://wayback.archive-it.org/30551/*/https://x.com/search?q=%23MyDisabledLifeIsWorthy