Skip to main content Skip to main navigation

Disability Covid Chronicles Web Collection

Call Number

TAM.857

Date

December 2020-October 2025, inclusive

Creator

Mills, Mara
Kornstein, Harris
Rapp, Rayna
Ginsburg, Faye D.
Ruhl, Bella

Extent

151 websites
in 151 archived websites.

Language of Materials

Websites are in English.

Abstract

Disability Covid Chronicles, a project compiled from 2020-2024 by New York University's Center for Disability Studies, aimed to document experiences of chronically ill and disabled people during the COVID-19 pandemic. The web collection contains their website; archived websites of other COVID-19 archive projects and disability resources; and their research, also known as fieldnotes. The fieldnotes include artwork, news articles, opinion pieces, social media posts, petitions, event listings, videos, photographs, art exhibitions, government documents, and toolkits.

Historical Note

Disability Covid Chronicles was a project created by New York University's Center for Disability Studies, to document life for chronically ill and disabled people during the COVID-19 pandemic. Mara Mills, Harris Kornstein, Faye Ginsburg, and Rayna Rapp coordinated the project from 2020-2024, compiling digital materials for research for their book How to Be Disabled in a Pandemic. The Disability Covid Chronicles project considered disability to include "neurodivergence, aging, illness, mental disability, injury, and addiction," and those that might not use the term "disabled."

Arrangement

The collection is arranged into three series:
Series I: Disability Covid Chronicles
Series II: Resources
Series III: Fieldnotes

Scope and Contents

The Disability Covid Chronicles Web Collection (December 2020-October 2025) is made up of archived websites created and compiled by the Disability Covid Chronicles as part of the research for How to Be Disabled in a Pandemic and also to document the experiences of disabled and chronically ill during the COVID-19 pandemic from 2020-2024. Materials featured as "fieldnotes" include press releases on COVID-19 guidance during the pandemic; news articles about COVID-19 and Long COVID; social media posts; government documents; survival guides for people facing higher risk of COVID-19 or triage discrimation; videos; podcasts; publicity websites related to documentaries; recaps of virtual events; art exhibitions; and artwork. Other topics documented in the research include masking messaging; government watchdogs related to COVID-19; mutual aid; protest resources; subway accessibility; COVID-19 testing; wastewater and COVID-19 postivity tracking; vaccination; experiences of quarantine; remote work; unemployment; caregiving; and medical rationing. They also documented websites on "disability experiences including incarceration, low wage and essential work, maternal mental health, anti-Asian violence, senior centers, migrant detention centers, Long Covid, public schools, the MTA, blindness and digital accessibility, arts workers, and the Black Lives Matter protests." Alice Wong's work as disability rights activist during the COVID-19 pandemic is also well documented in the collection. Although the project was national in scope, many of the websites focus on the disability community in New York City. The majority of the collection focuses on COVID-19, but there is some materials related to the mpox outbreak in 2022-2023.

Users should be aware that materials in the collection discuss suicide and violence against disabled people. Materials in the collection also include ableist language, which has been maintained to convey the meaning and reclamation of the language by creators of the material.

Conditions Governing Access

Open to researchers without restrictions.

Conditions Governing Use

This collection is protected by copyright and/or related rights. You are free to use materials in the collection in any way that is permitted by the copyright and related rights legislation that applies to your use. For other uses you need to obtain permission from the rights-holder(s).

Preferred Citation

To cite the archived websites in this collection: Identification of item, date; Disability Covid Chronicles Web Collection; TAM 857; Wayback URL; Tamiment Library/Robert F. Wagner Labor Archives, New York University.

Immediate Source of Acquisition

Websites were selected by Shannon O'Neill through the use of Archive-It. Archive-It uses web crawling technology to capture websites at a scheduled time and displays only an archived copy, from the resulting WARC file, of the website. The accession number associated with this collection is 2025.079.

Physical Characteristics and Technical Requirements

Due to technical or privacy issues, archived websites may not be exact copies of the original website at the time of the web crawl. Certain file types will not be captured dependent on how they are embedded in the site. Other parts of websites that the crawler has difficulty capturing includes Javascript, streaming content, database-driven content, and highly interactive content. Full-Text searches of archived websites are available at https://archive-it.org/organizations/567.

Take Down Policy

Archived websites are made accessible for purposes of education and research. NYU Libraries have given attribution to rights holders when possible; however, due to the nature of archival collections, we are not always able to identify this information.

If you hold the rights to materials in our archived websites that are unattributed, please let us know so that we may maintain accurate information about these materials.

If you are a rights holder and are concerned that you have found material on this website for which you have not granted permission (or is not covered by a copyright exception under US copyright laws), you may request the removal of the material from our site by submitting a notice, with the elements described below, to special.collections@nyu.edu.

Please include the following in your notice: Identification of the material that you believe to be infringing and information sufficient to permit us to locate the material; your contact information, such as an address, telephone number, and email address; a statement that you are the owner, or authorized to act on behalf of the owner, of an exclusive right that is allegedly infringed and that you have a good-faith belief that use of the material in the manner complained of is not authorized by the copyright owner, its agent, or the law; a statement that the information in the notification is accurate and made under penalty of perjury; and your physical or electronic signature. Upon receiving a notice that includes the details listed above, we will remove the allegedly infringing material from public view while we assess the issues identified in your notice.

Collection processed by

Nicole Greenhouse

About this Guide

This finding aid was produced using ArchivesSpace on 2025-11-18 16:40:44 UTC.
Using Describing Archives: A Content Standard
Language: Description is written in English.

Processing Information

In 2025, the Disability Covid Chronicles website was added to the web archives, as well as all websites linked to and featured on the Fieldnotes and Resources pages. Websites were assessed for quality assurance and efforts were made to capture missing embedded materials (videos or attached Google documents and pdfs) in websites and any websites that experienced content drift/redirection since it was added to the website by the creators of Disability Covid Chronicles. An example of content drift in this collection includes the change of URL from twitter.com to x.com. Descriptions were supplied to most websites, but titles were retained from their website. The abbreviated name for Coronavirus disease 2019 is used as COVID-19 and Covid-19 interchangeably by the creators of the websites, which is maintained throughout the finding aid.

Repository

Tamiment Library and Robert F. Wagner Labor Archives

Series I: Disability Covid Chronicles

Extent

2 websites in 2 archived websites.

Scope and Contents

This series contains the main website for the Disability Covid Chronicles project and a YouTube video on the project from the NYU Center for Disability Studies.

Disability Covid Chronicles

Disability Covid Chronicles YouTube Video

Series II: Resources

Extent

22 websites in 22 archived websites

Scope and Contents

This series contains the archived websites featured on the Resources page of the Disability Covid Chronicles website. The resources focus on other COVID-19 documentation projects and resources on disability in general.

Arrangement

Series is arranged alphabetically by creator.

Alternatives to Policing Based in Disability Justice

Creator

Abolition and Disability Justice Collective

Scope and Contents

The website contains their guiding principles, translations, resources, events, and a glossary.

Historical Note

Alternatives to Policing Based in Disability Justice is an online zine by the Abolition and Disability Justice Collective advocating for abolition in carceral systems, such as in social work and psychiatric agencies.

Disability & Covid-19, ADA National Network

Creator

ADA National Network

Scope and Contents

The website provides information about disability community rights under the Americans with Disabilities Act (ADA) and how they apply to COVID-19 and long COVID.

Long Hauling

Creator

ArtsEverywhere

Scope and Contents

Long Hauling "is a series of essays highlighting the stories of 'long COVID' survivors and community efforts to use the lessons learned from other viruses to provide care for patients during the early months of the outbreak and into the uncertainties of late-pandemic years."

The Breaking Point Project

Creator

Breaking Point Project

Scope and Contents

The Breaking Point Project is a storytelling and art platform for incarcerated disabled and chronically ill people.

Covid-19 and global mental health: Importance of cultural contexts

Creator

Centre for Culture and the Mind

Historical Note

The Covid-19 and Global Mental Health Project was established by researchers at the University of Copenhagen to explore "the emerging literature and debates about global mental health effects of the Covid-19 pandemic and related social isolation and economic downturn, asking how cultural and social difference is constructed and worked into the current mental health research."

Covid Disability Archive

Creator

Covid Disability Archive

Scope and Contents

The Covid Disability Archive is a repository of memorials, art, screenshots, texts, letters, videos, writing, memes, news stories, social media posts, and other materials that represent the experiences of chronically ill and/or disabled people during the Covid-19 pandemic.

Remote Access Archive

Creator

Critical Design Lab

Scope and Contents

The Remote Access Archive "documents the ways that disabled people and communities have used technology for remote forms of participation, both before and during the COVID-19 pandemic."

Crip Pandemic Life: A Tapestry

Creator

Cultural Studies Association

Scope and Contents

Special section of the Journal of the Cultural Studies Association's Lateral magazine. Articles focus on everyday life during the COVID-19 pandemic.

Exposed

Creator

Daniel, Sharon

Scope and Contents

Exposed, by Sharon Daniel, is a digital art project that documents the spread of COVID throughout the American carceral system. The project places audio clips and quotes by incarcerated people on a timeline of the COVID-19 pandemic.

DisArt

Creator

DisArt

Scope and Contents

The website features podcast episodes.

Historical Note

DisArt is an arts-centered nonprofit focused on creating and promoting disability culture.

Sick of It! A Disability Inside/Outside Project

Creator

Fierce Invalids
Inside/Outside Collective

Scope and Contents

The website contains information on their pen pal program and issues of their zines.

Historical Note

Sick of It! is a solidarity group that works to build relationships between incarcerated disabled people and people in the free world.

#CripCOVID19Syllabus

Creator

Hamraie, Aimi
Dolmage, Jay

Scope and Contents

Syllabus of "first-person accounts of disabled, chronically ill, fat, Mad, Deaf, and crip experiences, activism, and thinking on the ongoing COVID-19 pandemic."

NYC Covid-19 Oral History, Narrative, and Memory Project

Creator

Incite Institute

Historical Note

An oral history project by sociologists, oral historians, and anthropologists at Incite and the Columbia Center for Oral History Research documenting New York City's experience of the pandemic.

COVID Collections Project

Creator

Initiative for Critical Disaster Studies

Historical Note

The COVID Collections Project is a collaboration among the Initiative for Critical Disaster Studies (NYU Gallatin), the Archives and Public History Program (NYU Graduate School of Arts and Sciences), and the E.L. Quarantelli Resource Collection at the University of Delaware's Disaster Research Center to catalog Covid documentation projects.

Voices of People with Disabilities During the COVID19 Outbreak

Creator

International Disability Alliance

Scope and Contents

Website featuring stories from disabled people internationally that share their experiences with the COVID-19 pandemic.

Creativity in the Time of COVID-19

Creator

Michigan State University

Scope and Contents

The website mostly contains information on their conference in 2024.

Historical Note

Creativity in the Time of COVID-19: Art as a Tool for Combating Inequity and Injustice (CTC-19) is a project of the Digital Humanities & Literary Cognition Lab at Michigan State University that documented how people were using creativity to cope with the pandemic.

Autistic, Surviving and Thriving under COVID-19: Imagining Inclusive Autistic Futures

Creator

Re•Storying Autism in Education

Historical Note

The Re•Storying Autism in Education research project sought autistic and neurodivergent participants for an online digital zine-making workshop and research interviews about experiences of education and COVID-19 in October 2020.

Sick in Quarters

Creator

Sick in Quarters Collective

Historical Note

Sick in Quarters (SiQ) is a network of disabled and chronically ill artists and activists.

Autoethnographies of a Pandemic from Brooklyn's Epicenter, African American Intellectual History Society

Creator

Theoharis, Jeanne
Entin, Joseph B.
Braswell, Dominick

Scope and Contents

Article by Jeanne Theoharis, Joseph Entin, and Dominick Braswell in Black Perspectives.

COVID Ableism Narrative Archive Contact Form (UC Berkeley RadMadLab)

Creator

University of California, Berkeley

Scope and Contents

Submission form for the COVID Ableism Narrative Archive at the University of California, Berkeley Disability Lab.

The Pandemic Journaling Project

Creator

University of Connecticut

Historical Note

The Pandemic Journaling Project is an opt-in project for everyday people to record journal entries on their COVID-19 pandemic experience four times a year.

High-Risk Pandemic Stories: A Syllabus

Creator

Wong, Alice, 1974-

Scope and Contents

Blog post on the Disability Visibility Project.

Series III: Fieldnotes

Extent

120 websites in 120 archived websites.

Scope and Contents

This series contains the archived websites featured on the Fieldnotes page of the Disability Covid Chronicles website. The fieldnotes include artwork, news articles, opinion pieces, social media posts, petitions, event listings, videos, photographs, art exhibitions, government documents, and toolkits on experiences of disabled people during the COVID-19 pandemic. This research was collected by NYU Center for Disability Studies researchers from 2020-2024.

Arrangement

Series is arranged alphabetically by creator.

@kateisresting

Creator

@kateisresting

Scope and Contents

Tweet starting the #AccessiblilityForAbleds hashtag.

60 Minutes

Creator

60 minutes (Television program)

Scope and Contents

Video of President Joe Biden on 60 Minutes.

Ackerman, Emily

Creator

Ackerman, Emily

Scope and Contents

Article by Emily Ackerman on COVID-19 isolation.

Al-Aly, Ziyad; Xie, Yan; Choi, Taeyoung

Creator

Al-Aly, Ziyad

Scope and Contents

Preprint on if nirmatrelvir lessens risk of Long COVID.

American Association of People with Disabilities

Creator

American Association of People with Disabilities

Scope and Contents

Press release by the American Association of People with Disabilities on the reduction in isolation guidance by the CDC.

AORTA (Anti-Oppression Resource and Training Alliance)

Creator

AORTA (Anti-Oppression Resource and Training Alliance)

Scope and Contents

Image containing the words "Disabled People Deserve to Live." The post calls for a public health strategy that includes disabled people.

Arielle, Zipporah

Creator

Arielle, Zipporah

Scope and Contents

Article by Zipporah Arielle on Holocaust Remembrance Day during COVID.

Barbarin, Imani

Creator

Barbarin, Imani

Scope and Contents

TikTok video by Imani Barbarin on COVID-19 being a mass disabling event.

Benness, Brianne

Creator

Benness, Brianne

Scope and Contents

Article by Brianne Benness on vaccine hesitancy for people with chronic illness.

Brooklyn Center for Independence of the Disabled

Creator

Brooklyn Center for Independence of the Disabled

Scope and Contents

Photographs of members of the Brooklyn Center for Independence of the Disabled handing out KN95 masks and leaflets at Atlantic Terminal in Brooklyn.

California Care Rationing Coalition

Creator

California Care Rationing Coalition

Scope and Contents

Stacey Milbern on her concerns about care rationing as a ventilator user at a May 6, 2020 Press Conference with the California Care Rationing Coalition.

Center for Disease Control

Creator

Center for Disease Control

Scope and Contents

CDC article on racial disparities in treatment of COVID-19 from 2022.

Centers for Medicare & Medicaid Services

Creator

Centers for Medicare & Medicaid Services (U.S.)

Hospital-Acquired Condition Reduction Program

Scope and Contents

Information on the Centers for Medicare and Medicaid on a value-based-purchasing program to link inpatient hospital care with Medicare payments.

The Hospital Value-Based Purchasing (VBP) Program

Scope and Contents

Information on the Centers for Medicare and Medicaid to receive incentive patients for high quality of care in the inpatient hospital setting.

Chalkbeat

Creator

Chalkbeat

"How remote learning upended instruction for NYC students with disabilities and their families"

Scope and Contents

Article in Chalkbeat on remote learning for students with disabilities.

"NYC students with disabilities denied crucial services during remote learning, suit alleges"

Scope and Contents

Article in Chalkbeat on lawsuit filed against New York City on owed special education student hours during the COVID pandemic.

"NYC gives the OK to shrink special education services amid coronavirus upheaval"

Scope and Contents

Article in Chalkbeat on reducing special education services at the beginning of the COVID pandemic.

Chinese-American Planning Council

Creator

Chinese-American Planning Council (New York, N.Y.)

Scope and Contents

Graphic celebrating the 50th anniversary of Chinese-American Planning Council's Open Door Senior Center.

Contreras Maya, María Celina

Creator

Contreras Maya, María Celina, 1967-

Scope and Contents

Tweet thread about New York City subway station accessibility.

Critical Design Lab

Creator

Critical Design Lab

Scope and Contents

The website includes a participation guide for setting up a Remote Access party as well as event listings for previous events from 2020-2023.

Historical Note

Remote Access is a nightlife event for disabled people curated and designed by the Critical Design Lab.

Davids, JD

Creator

Davids, JD

Scope and Contents

Blog post by JD Davids on people having the right to health despite being unvaccinated.

The Death Panel

Creator

The Death Panel

Scope and Contents

The website contains episodes and transcripts, as well as information on their Medicare for All Week of action in 2021.

Historical Note

The Death Panel is a podcast hosted by Beatrice Adler-Bolton, Artie Vierkant, Phil Rocco, and Jules Gill-Peterson on the "political economy of health."

de Freytas-Tamura, Kimiko

Creator

de Freytas-Tamura, Kimiko

Scope and Contents

Article on protests against the Museum of Chinese in America.

Disability Rights Advocates

Creator

Disability Rights Advocates, Inc.

Scope and Contents

Press release from 2022 on disability advocates and the MTA signing a settlement agreement to make the subway 95% accessible by 2055.

Dolan, Gearóid

Creator

Dolan, Gearóid

Scope and Contents

Website for The Biggest Obstacle, a documentary examining accessibility in the MTA subway system.

Downstate New York ADAPT

Creator

Downstate New York ADAPT

Scope and Contents

Photo of Downstate New York ADAPT protesters.

EV Grieve

Creator

EV Grieve

Scope and Contents

Blog post by EV Grieve on the NYPD sweep of unhoused residents in the East Village. Includes interviews of the residents of "Anarchy Row."

Gaeta, Amy

Creator

Gaeta, Amy

Scope and Contents

Article by Amy Gaeta on virtual home building and rebuilding during the COVID-19 pandemic.

Gardiner, Finn

Creator

Gardiner, Finn

Scope and Contents

Article by Finn Gardiner on ableism and fatphobia during the COVID-19 pandemic.

Hinds, Carolyn

Creator

Hinds, Carolyn

Scope and Contents

Article by Carolyn Hinds on the film industry and accessibility.

Ho, Sandy

Creator

Ho, Sandy

Scope and Contents

Article by Sandy Ho on the Better Care Better Jobs Act.

Jackson, Monique

Corona Diary Instagram

Scope and Contents

Instagram feed of Monique Jackson's graphic journal.

Still Ill: Corona Diary

Scope and Contents

Still Ill: Corona Diary is a graphic journal made up of a series of drawings documenting Monique Jackson's experiences after falling ill from a suspected infection of Covid-19 in March 2020.

Johnson, Cyree Jarelle

Creator

Johnson, Cyree Jarelle

Scope and Contents

Article by Cyrée Jarelle Johnson on Black disability history.

Long COVID Justice

Creator

Long COVID Justice

Commit to Long COVID Justice

Scope and Contents

Pledge on committing to justice for Long COVID.

Long COVID Justice Instagram

Scope and Contents

Instagram feed for the Long COVID Justice grassroots organization. Includes posts on resource sheets and events.

Long COVID Justice Valentines

"Pandemics Are Chronic"

Scope and Contents

Statement by Long COVID Justice on prioritizing chronically ill and disabled people beyond the COVID-19 pandemic.

Mariani, Mike

Creator

Mariani, Mike

Scope and Contents

Article in the Guardian on the acceptance of Long COVID as a health condition.

Mugrabi, Sunshine

Creator

Mugrabi, Sunshine

Scope and Contents

Article in Rooted in Rights by Sunshine Mugrabi.

Myalgic Encephalomyelitis Action Network

Creator

Myalgic Encephalomyelitis Action Network

2022 #MillionsMissing Newsletter

Scope and Contents

Newsletter on the 2022 #MillionsMissing protest.

#MillionsMissing Our Demands

Scope and Contents

Letter from the Myalgic Encephalomyelitis Action Network calling for President Biden to declare Long COVID and myalgic encephalomyelitis/chronic fatigue syndrome a national emergency.

Postcards to Doctors

Scope and Contents

Postcard campaign by the Myalgic Encephalomyelitis Action Network to encourage United States doctors to take a course on myalgic encephalomyelitis.

National Federation of the Blind

Creator

National Federation of the Blind

Letter Regarding the Accessibility of At-Home COVID-19 Tests and Test Requests (January 3, 2022)

Scope and Contents

Letter to the President of the United States from the National Federation of the Blind on making at-home COVID tests accessible to blind people.

Letter to FDA Commissioner Regarding Accessible Instructions for At-Home COVID-19 Test Kits (February 4, 2022)

Scope and Contents

Letter to the Commissioner of the United States Food and Drug Administration from the National Federation of the Blind on creating accessible at-home COVID tests for blind people.

NBC News

Creator

NBC News

Scope and Contents

NBC News article on the rollout of the Mpox vaccine.

New York Office of the Mayor

Creator

New York (N.Y.). Office of the Mayor

Scope and Contents

Press release from the New York City mayor's office.

New York Governor

Creator

New York (State). Governor

Scope and Contents

Press release on closure of non-essential businesses at the onset of the COVID-19 pandemic.

New York State Assembly

Creator

New York (State). Legislature. Assembly

New York State Assembly Bill A5367A

Scope and Contents

Bill that removes "certain restrictions on eligibility for personal and home care services under Medicaid."

New York State Assembly Bill A7712B

Scope and Contents

Bill that "provides for a myalgic encephalomyelitis/chronic fatigue syndrome education and outreach program."

New York City Public Schools

Creator

New York City Public Schools

Scope and Contents

Includes New York City Public Schools updates to COVID-19 Health and Safety Protocols in 2021.

New-York Historical Society

Creator

New-York Historical Society

Scope and Contents

Exhibit at the New-York Historical Society on the history of homelessness and artist and activist response in the 1980s and 1990s.

NoBody Is Disposable Coalition

Creator

NoBody Is Disposable Coalition

Scope and Contents

A toolkit that covers rights and strategies for people facing potential triage discrimination based on disability or weight, alone or in combination with other characteristics, during the COVID-19 pandemic in the United States.

NY1

Creator

NY1

Scope and Contents

NY1 report on COVID sub-variant JN.1.

Ocula

Creator

Ocula

Scope and Contents

Article in Ocula about the CRIP TIME exhibit at the MMK Museum für Moderne Kunst in Frankfurt, Germany.

Open Doors NYC

Creator

Open Doors NYC

Historical Note

Open Doors NYC is a collective of nursing home residents, advocates, and allies who work through art and activism. Their projects include documentaries, poetry anthologies, plays, professional development workshops, a podcast, and weekly events.

Meet The Reality Poets

Open Doors NYC

Scope and Contents

The website includes a Nursing Home Bill of Rights.

Fire Through Dry Grass

Scope and Contents

The website contains a synopsis, trailer, and biographies of filmmakers.

Historical Note

Fire Through Dry Grass is a documentary by Alexis Neophytides and Andres "Jay" Molina on nursing home residents on Roosevelt Island during the COVID-19 pandemic.

Oshin, Olafimihan

Creator

Oshin, Olafimihan

Scope and Contents

Article in the Hill on protests outside of the White House in 2022 by people who suffer from Long COVID and chronic fatigue syndrome.

Osmundson, Joseph

Creator

Osmundson, Joseph, 1983-

Scope and Contents

Tweet about Mpox.

Parents for Responsive Equitable Safe Schools

Creator

Parents for Responsive Equitable Safe Schools

Scope and Contents

Website containing charts of weekly New York City COVID case rates, children hospitalized from COVID rates, and child death from COVID rates.

Partnership for Inclusive Disaster Strategies

Creator

Partnership for Inclusive Disaster Strategies

Ending the COVID Emergency is a Disaster for Disabled People

Creator

Partnership for Inclusive Disaster Strategies

Scope and Contents

Press release by the Partnership for Inclusive Disaster Strategies on the lifting of the COVID-19 Public Health Emergency by the Biden Administration.

The Partnership for Inclusive Disaster Strategies X Post

Creator

Partnership for Inclusive Disaster Strategies

Scope and Contents

X post that says, "COVID-19, Here to Stay, we failed. Ending the #COVID Emergency is a #Disaster for #Disabled People Decisionmakers declaring that the loss of 400+ of our people per day does not rise to the level of being an emergency."

People's CDC

Creator

People's CDC

Historical Note

The People's CDC is a watchdog and advocacy group of healthcare, science, and public health advocates and professionals working to provide guidance on navigating COVID-19 for local and federal government agencies.

"CDC's HICPAC needs public oversight"

Creator

People's CDC

Scope and Contents

Blog post by the People's CDC on oversight for the Center for Disease Control's Healthcare Infection Control Practices Advisory Committee (HICPAC).

People's CDC

Scope and Contents

The website features COVID-19 wastewater data; contagious illness updates; press releases; an external review of the CDC; action campaigns; webinars; and other news updates.

Tell Medicare/Medicaid: Hospitals should protect us from COVID-19

Creator

People's CDC

Scope and Contents

Guide for submitting a public comment to the Centers for Medicare and Medicaid to include COVID care in Hospital-Acquired Condition (HAC) Reduction Program and/or its Value-Based Purchasing Program.

Universal Masks and COVID-19 Admission Screening Should be Standard of Care

Creator

People's CDC

Scope and Contents

Fact Sheet by the People's CDC on universal masks as standard of care in healthcare.

Peters, Gabrielle

Creator

Peters, Gabrielle

Scope and Contents

X feed of Gabrielle Peters, a disabled writer and policy analyst.

Piepzna-Samarasinha, Leah Lakshmi

Creator

Piepzna-Samarasinha, Leah Lakshmi, 1975-

"a long winter crip survival guide for pandemic year 4/forever"

Creator

Zavitsanos, Constantina, 1977-

Scope and Contents

Guide to pandemic survival for immunocompromised people in the later years of COVID.

"Cripping The Resistance: No Revolution Without Us"

Scope and Contents

Article by Leah Lakshmi Piepzna-Samarasinha on disability activism and justice.

"How Disabled Mutual Aid Is Different Than Abled Mutual Aid"

Scope and Contents

Article by Leah Lakshmi Piepzna-Samarasinha on disabled mutual aid.

Pulrang, Andrew

Creator

Pulrang, Andrew

Scope and Contents

Article in Forbes by Andrew Pulrang.

Raskin, Jamie

Creator

Raskin, Jamie

Scope and Contents

Press release by Jamie Raskin.

"The Sequential Organ Failure Assessment (SOFA) and revised ventilator triage guidance: since we are still implementing outdated and more inequitable frameworks now, will we learn any lessons longer term?"

Creator

Schmidt, Harald (Professor of medical ethics & health policy)
Roberts, Dorothy E., 1956-
Eneanya, Amaka D

Scope and Contents

Article by Harald Schmidt, Dorothy E Roberts, and Amaka D Eneanya on ventilator triage.

Schuchman Deaf Documentary Center

Creator

Schuchman Deaf Documentary Center

Scope and Contents

Panel discussion on New York City Deaf life during the COVID-19 pandemic.

Sick in Quarters Collective

Creator

Sick in Quarters Collective

Historical Note

Sick in Quarters (SiQ) is a remote disabled artist-led collective.

COVID-19 Protest Resources

Creator

Sick in Quarters Collective

Scope and Contents

Brochure on how to stay safe from COVID-19 during protests, as well as Know Your Rights information.

Sick in Quarters Linktree

Scope and Contents

The Linktree contains links to events, fundraising campaigns, and the mask distribution network database.

The Sick Times

Historical Note

The Sick Times is a news website focusing on the continuing impact of COVID and Long COVID.

"Covid-19 in the hierarchy of the Gaza health crises"

"Kennedy's HHS commits to Long COVID, but without clear funding"

The Sick Times

Sjunneson, Elsa

Creator

Sjunneson, Elsa R.

Scope and Contents

Article by Elsa R. Sjunneson on assisted suicide, quality of life, and triage during COVID.

Sommerstein, Michele

Creator

Sommerstein, Michele

Scope and Contents

Essay by Michele Sommerstein on being disabled in New York City during the COVID-19 pandemic.

Soyer, Hannah

Creator

Soyer, Hannah

Scope and Contents

Article by Hannah Soyer on ableism at the beginning of the COVID pandemic.

Special Support Services, LLC

Creator

Special Support Services, LLC

Historical Note

Special Support Services provides "affordable advocacy, systems navigation, and peer support for NYC families of students with disabilities."

"Spread Thin: Survey Reveals Students Without Special Education Instruction"

Scope and Contents

Report by parents and advocates of Special Support Services, LLC.

Special Support Services, LLC

Scope and Contents

Website includes testimonials, community surveys, and an intake form.

The Squeaky Wheel

Creator

The Squeaky Wheel

Scope and Contents

Satirical article on the end of the COVID-19 pandemic.

Stolberg, Sheryl Gay

Creator

Stolberg, Sheryl Gay, 1961-

Scope and Contents

Article in the New York Times on the backlash to President Biden's statement on the COVID-19 pandemic being "over."

Stratman, Josephine

Creator

Stratman, Josephine

Scope and Contents

Daily News article on mask mandates in hospitals in New York.

Tran, Lucky

Creator

Tran, Lucky

Scope and Contents

X post by Dr. Lucky Tran on masking.

White-Johnson, Jen

Creator

White-Johnson, Jen

Scope and Contents

Live mural painting event by Jen White-Johnson to honor Black disabled people. Also includes mock-ups for potential other murals by White-Johnson.

Whitney Museum of American Art

Creator

Whitney Museum of American Art

Historical Note

2 Lizards is a film by Meriem Bennani and Orian Barki that depicted "a surrealist view of the early months of the COVID-19 pandemic as it unfolded in New York City." The film was presented at the Whitney Museum of American Art in 2022-2023.

Wong, Alice

Biographical Note

Alice Wong (1974-) is a disability rights activist and founder of the Disability Visibility Project (DVP). DVP was established in 2014 and features articles on "disability media and culture."

#HighRiskCA: COVID-19 prioritization for high-risk Californians

Scope and Contents

Curated list of tweets and articles on the elimination of the "1C phase of prioritized groups for vaccination" in California.

"#N95s4UCSF: Call to Action"

Scope and Contents

Blog post by Alice Wong calling for an N95 mask mandate at University California San Francisco Health.

Alice Wong Instagram Post

Scope and Contents

Instagram post about Alice Wong's visit to the Intensive Care Unit.

"And Now Here We Are"

Scope and Contents

Article on disabled people's experiences in the United Kingdom during COVID.

Coronavirus and the disability community #HighRiskCOVID19

Scope and Contents

Curated list of tweets and articles related to COVID-19 and the disability community.

"Disabled Advocates Demand Better Vaccine Access as They Face Greater Risks of Dying from COVID-19"

Scope and Contents

Interview with Alice Wong on Democracy Now!

"Disabled Oracles and the Coronavirus"

Scope and Contents

Article on the medical industry complex.

Disability Visibility Project

Scope and Contents

About page for the Disability Visibility Project.

"Food Insecurity & COVID-19: Interview with Héctor M. Ramírez"

Scope and Contents

Article on hunger and food insecurity during COVID.

"Freedom for Some Is Not Freedom for All"

Scope and Contents

Article on disability rights.

"High-Risk Pandemic Stories: A Syllabus"

Scope and Contents

Blog post on the Disability Visibility Project. Links to interviews, guest essays, and podcast episodes on the Project's website.

"I'm disabled and need a ventilator to live. Am I expendable during this pandemic?"

Scope and Contents

Article by Alice Wong in Vox.

"'It Just Burns Me Up': Disability Activist Alice Wong Reminds California This Pandemic Is Far From Over"

Scope and Contents

Interview with Alice Wong on KQED.

"Message from the Future: Disabled Oracle Society"

Scope and Contents

Talk given by Alice Wong.

"Night of Ideas"

Scope and Contents

Talk given by Alice Wong on KQED.

Q&A with Andres "Jay" Molina and Alexis Neophytides

Scope and Contents

Article on the documentary, Fire Through Dry Grass.

Q&A with Ingrid Tischer

Scope and Contents

Interview with Ingrid Tischer on end-of-life care and hospitalization.

Q&A with Sabrina Epstein

Scope and Contents

Article on the COVID-19 vaccine prioritization dashboard.

Q&A with Tory Cross

Scope and Contents

Article on vaccine equity in California.

"The Political is Personal"

Scope and Contents

Essay by Alice Wong as part of PEN America's "We Will Emerge" project. The project aimed to reach out to voters ahead of the 2020 Presidential Election.

"There Is No One Way"

Scope and Contents

Essay by Alice Wong in SFMoMa's Open Space magazine.

"What the Disabled Community offered the world"

Scope and Contents

List of tools members of the disability and chronic illness community offered the world.

"Voters With Disabilities Face Barriers in 2020 From COVID-19"

Scope and Contents

Article by Alice Wong in Teen Vogue.

World Health Organization

Creator

World Health Organization

Scope and Contents

X post by the World Health Organization declaring the COVID-19 health emergency over.

Zucker, Howard David

Letter from Howard Zucker

Creator

Zucker, Howard David

Scope and Contents

Letter from the commissioner of the New York Department of Health on "regulations regarding the use of codeine and tramadol in children and a rare disorder called Myalgic Encephalomyelitis/Chronic Fatigue Syndrome" in May 2017.

Letter from Howard Zucker

Creator

Zucker, Howard David

Scope and Contents

Letter from the commissioner of the New York Department of Health on the state of the COVID-19 pandemic in July 2021.

#MyDisabledLifeIsWorthy

Scope and Contents

Tweets using the hashtag #MyDisabledLifeIsWorthy.

Tamiment Library and Robert F. Wagner Labor Archives
Elmer Holmes Bobst Library
70 Washington Square South
2nd Floor
New York, NY 10012